RESOURCES
Information and Perspectives
One of the best things about this work is connecting with people who are creating thoughtful guides, writing wonderful books, and sharing their knowledge and experience in so many ways.
We’ve gathered some of our favorite resources here, a mix of information, education, and perspectives from people living with and working alongside dementia.
ADAPTIVE TEXT PUBLICATIONS
NostalgiaWorks
Not Interventions, but Invitations with Intention. Laurette Klier’s award-winning collection is a complete dementia-inclusive reading experience — curated monthly, delivered to your door, designed to honor identity and spark connection.
Joyful Memories Magazine
Designed especially for people living with Alzheimer’s. Fun, engaging content free of ads, small type and clutter. Award-winning, easy-to-navigate design creates a familiar and comfortable reading experience.
Reminisce Books
Reminisce books are thoughtfully designed to be dementia-friendly without being labeled as such. The words Dementia and Alzheimer’s never appear on the books. Instead, they are simply welcoming, beautifully designed large-print books that anyone can enjoy.
Emma Rose Sparrow
Author of books designed specifically for adults living with dementia, including The Sandy Shoreline and What the Wind Showed Me, using short chapters, accessible formatting, and straightforward language.
UK Adaptive Reading Resources
Cognitive Books
UK-based publisher creating dementia-friendly books with short passages, familiar subjects, illustrations, and accessible formatting.
Dovetail Press
UK-based publisher creating adapted versions of classic literature for people living with dementia, with shorter texts and accessible presentation.
DEMENTIA-INCLUSIVE EDUCATION
Dementia Voices UK
This UK-based organization has a wealth of information, including the very helpful Dementia-Friendly Writing guides from both the DEEP Program and Innovations in Dementia.
Dementia Engagement and Empowerment Project: Dementia-Friendly Writing Guide
Innovations in Dementia: How to Write and Produce Better Information for People With Dementia
Dementia Action Alliance
From the website: “DAA is where people come together to connect, form friendships, exchange ideas, learn, and create a better community in which to live with dementia or mild cognitive impairment (MCI).”
They have also published a free downloadable: Pathways to Living Well with Dementia, that can also be purchased in print form.
Dementia Friendly Writing
UK Based Heather Easton is an advocate and care partner, as well as a consultant for helping businesses and individuals write documents and other signage for people living with dementia.
The Braille Institute – Atkinson Hyperlegible Font
From the Braille Institute:
At Braille Institute, we’ve created a family of hyperlegible® fonts designed to improve legibility and readability for individuals with low vision. These carefully crafted fonts feature clear, highly distinctive letters and numbers that make reading easier and more accessible.
Our award-winning font has made reading easier for millions upon millions of people and continues to change lives daily. Good news, it’s free for everyone—from personal use to all commercial applications.
BOOKS WRITTEN BY PEOPLE LIVING WITH DEMENTIA
This list is not exhaustive as new works are coming out regularly. You can help these authors spread the word by purchasing their work as well as requesting these titles at your local libraries or bookstores.
Peter Berry & Deb Bunt: Slow Puncture, Patching The Puncture, Walk With Me: Musings Through the Dementia Fog (Poetry)
Nancy Nelson: Blue. River. Apple. (Poetry)
Wendy Mitchell: Somebody I Used To Know
Robert Davis: My Journey Into Alzheimer’s Disease
Diana Friel McGowin: Living The Labyrinth: A Personal Journey Through the Maze of Alzheimer’s
Thomas DeBaggio: Losing My Mind: An Intimate Look at Life with Alzheimer’s, When It Get’s Dark: An Enlightened Reflection with Alzheimer’s
Jeanne Lee: Just Love Me: My Life Turned Upside Down by Alzheimer’s
Christine Bryden: Dancing With Dementia: My Story of Living Positively with Dementia, Nothing About Us Without Us! 20 Years of Dementia Advocacy, Before I Forget: How I Survived a Diagnosis of Younger-Onset Dementia at 46, Who Will I Be When I Die?
Greg O’Brien: On Pluto. Inside The Mind of Alzheimer’s
Kate Swaffer: What The Hell Happened To My Brain?
Keith Oliver: Walk The Walk, Talk The Talk, and, Dear Alzheimer’s: A Diary of Living With Dementia
BOOKS ON DEMENTIA CARE
DEMENTIA HOME CARE BOOK: How to Prepare Before, During, and After, Tracy Cram Perkins
Dementia caregivers cope with repetitive questions, mood swings, lost personal space, and live with exhaustion, frustration, and anger. You may not know how to prepare. Perkins’s twelve-plus years of experience caregiving for two parents with dementia provided the nucleus of Dementia Home Care.
Understanding the Changing Brain, Teepa Snow
From Faith to Action: My Journey to Healing Communities Facing Dementia, Fayron Epps, PHD, RN,
Dementia Beyond Disease: Enhancing Well-Being by Allen Power, MD.
Dr. Power offers a person-centered approach to dementia care that looks beyond the disease to focus on well-being, relationships, and quality of life.